Owen's story began with an ER visit that led to a diagnosis of Fanconi Syndrome, with the underlying cause being Cystinosis, where cystine accumulates and damages major organs. His daily rigorous treatment manages the disease. He is facing a future that may require a kidney transplant.

Owen is a sweet young boy who loves basketball, especially the Celtics and his favorite player, Jayson Tatum. He also enjoys playing the Xbox and board games with his family. One of his favorite places is the Foxwoods arcade. Owen and his family can't wait to go to Disney and stay at Give Kids The World Village!

Janessa was diagnosed with Juvenile Dermatomyositis in September 2024 after her family noticed a rash that wouldn't go away and struggles with her mobility. Before this, Janessa was full of energy and always on the move. She started treatment right away, including weekly infusions, daily meds, and injections. Losing some of her mobility has been tough, but Janessa hasn't lost her bright spirit.

Janessa is super social, has a big heart, and loves arts and crafts. Her favorite character is the Hulk, and she enjoys video games with her siblings, puzzles, and spending time at the pool or beach with her family. Janessa can't wait to make magical memories at Disney World and stay at Give Kids The World Village!

Arianna, diagnosed with cerebral palsy at six months, underwent nerve-cutting surgery in March 2021, followed by intensive therapy to relearn walking. Now, she uses a walker. She had her finger bones broken and foot surgery to correct her posture, and both femurs were plated. In May, she'll have the plates removed.​

Jared is a triplet who has been diagnosed with cerebral palsy, autism, a brain injury to the frontal lobe and severe prematurity. He and his siblings were adopted when Jared was 3.

Sofia was diagnosed with acute lymphoblastic leukemia back in July of 2022. She is on an aggressive chemo cycle every 3 weeks to help her fight off the cancer.

​Sofia loves arts and crafts - especially drawing and painting. She also loves to shop at Target and play with her dog and bunny! Sofia is excited to spend quality time with her family and make memories in Disney and SeaWorld!  ​

Oliver was diagnosed with kidney cancer in April of 2023 at the age of 3. He is currently receiving chemotherapy through December.​

Graciela was a micro preemie and twin survivor, being born at 23 weeks old and weighing 1.2 pounds. She spent the first 149 days of her life in the NICU. Graciela has had 11 surgeries and countless procedures, including a stem cell transplant at 2 ½ years old.

Malachi was 5 years old when he was diagnosed with Sickle Cell disease. He was in and out of the hospital until 9 years old. He is still actively receiving treatments at the Tomorrow Fund.

Owen was recently diagnosed with Leukemia in April of 2023. He actively receives chemotherapy at Hasbro Children’s Hospital, and he will be finishing soon.

Julia was diagnosed with Neuroblastoma in February of 2023. She was at a routine doctor's visit when a lump was found. Julia was sent to the hospital where tests revealed it was Neuroblastoma. She had a 14-hour surgery in NY and will be starting therapy soon.

Issa was just a tiny baby when he was first seen at Hasbro's Emergency Department and has been receiving care at the Tomorrow Fund ever since. At the age of 3, he suffered a severe stroke. While he is doing well now, he remains susceptible to having another one.

Kweli was born premature and spent 3 months in the NICU. He had a brain bleed that turned into fluids, eventually having a shunt put in. At his revision, the pressure caused the right side of his brain to collapse on the shunt. After noticing something on his left ear, he had surgery on his neck to shave the spine so fluid could go down. He is now back to stage one – overactive muscles with many spasms.

Holly was diagnosed with Bilateral Retinoblastoma when she was 4 months old and started with chemotherapy directly after. One of her eyes was removed due to tumor recurrence. Holly spent many days at Boston Children's Hospital doing anesthesia exams, laser treatments to her eye, and many MRI's.

Durrell was diagnosed with Sickle Cell and has been in and out of the hospital since he was 9 months old. He had his spleen removed at the age of 3 and will soon have another surgery to remove his tonsils, adenoids, and the fluid buildup in his ears.

Luke was born 10 weeks early and has always had a medically complicated life. He suffers from multiple heart conditions and is on beta blockers to control his heartbeat. Last October, Luke and his family learned how short life can be when his mother almost passed away.

Gabby was diagnosed with B-cell leukemia in January of 2023. The beginning of her diagnosis posed many challenges. Initially, she thought she had pulled a muscle while running track and field due to the intense pain in her legs and joints, which persisted even during treatment.

In May 2022, 2-year-old Jack was diagnosed with T-cell lymphoblastic lymphoma. His mom, dedicated to supporting him, left her teaching job so she could be there for Jack every step of the way. Jack loves to build Lego creations, and once he warms up to you he will tell you all about his latest creations. He is found making Lego creations on his clinical treatment days.​

​In February 2024, Lars was completely healthy until he suddenly developed a severe headache and was rushed to the hospital. He had a stroke likely caused by an AVM (arteriovenous malformation) in his brain, which doctors believe he has had since birth. He also had an aneurysm, which was successfully treated. Currently, Lars is receiving treatment for the AVM at Boston Children's Hospital.​

​June began experiencing right arm spasms two weeks before Christmas last year. She was diagnosed with focal seizures on the left hemisphere, but her condition didn't improve with medications. After more tests she was diagnosed with a rare brain disorder (EPC). Despite treatment, the seizures continued. She is now being tested for Rasmussen's encephalitis. If confirmed, June may undergo brain surgery to disconnect the left side of her brain. ​

When Dariell's mom was 33 weeks pregnant, she had a fall and developed pre-eclampsia. Doctors had to do an emergency C-section because Dariell wasn't moving. He had a brain bleed and had to stay in the NICU for two months. Doctors noticed he wasn't developing like other babies, and when he was one year old, they diagnosed him with autism. In 2020, they also diagnosed him with cerebral palsy and an intellectual disability.​

Daine and his family moved from Alaska to Rhode Island 12 years ago for Daine's health. Before the move, Daine suffered seven broken bones without a diagnosis. Within weeks of arriving, he broke his femur and was rushed to Hasbro Children's Hospital. The doctors diagnosed him and started treatment within six weeks. Since then, Daine has had 27 broken bones and deals with hearing loss, as well as heart and lung issues. He's had multiple surgeries and broke his back twice but remains the happiest kid his family knows.

At her 20-week anatomy scan, doctors delivered the heartbreaking news that Adilyn had a left-sided Congenital Diaphragmatic Hernia (CDH) with a 50% chance of survival. Her abdominal organs had moved into her chest cavity, compressing her heart and preventing her left lung from developing. Adilyn demonstrated incredible resilience from the day she was born. She spent 55 days in the Cardiac Vascular Intensive Care Unit, was placed on cardiopulmonary bypass (ECMO) at 23 hours old, and underwent repair surgery the next morning. Despite numerous complications, she defied the odds. Now 6 years old, Adilyn is closely monitored at Boston Children's Hospital by a team of specialists. Though she has faced challenges, her perseverance continues to shine. ​

At 4-6 months old, Olivia was not hitting her milestones, so the family took her to Boston Children's Hospital. She was diagnosed with GNA01, a disorder of the 16th set of chromosomes, after participating in a study. Common characteristics are seizures, abnormal movements, and developmental delays. She takes medication to manage her symptoms. Olivia cannot sit or crawl, and she just started rolling over, but it isn't consistent. Olivia goes to OT, PT, and speech therapy five times a week. She has an AAC device to help with communication. Olivia also has a cerebral visual impairment diagnosis, meaning she is legally blind and doesn’t process what she sees.​​

Ashly is a brave girl who just finished her leukemia treatment in June. Ashly, though shy, is sweet and smart and has a puppy who brings her comfort. She loves swimming in pools and jacuzzis and enjoys going to arcades. Seafood is her favorite food. Ashly has family in Florida and has always wanted to visit the Hard Rock Hotel in Hollywood, FL. Ashly and her family are excited about their upcoming trip to the Hard Rock Hotel, where they will make the most amazing memories together!

Shane was diagnosed with cancer in April 2024 and has been in inpatient care since then. In August, he underwent a bone marrow transplant. Despite his health challenges, Shane graduated from high school this year. He was adopted into a very supportive family who has been by his side throughout his cancer journey, visiting him frequently in the hospital. Shane is a loving and resilient young man, having faced numerous life challenges both before and after his diagnosis, showing remarkable strength and perseverance.​​

Alester was born prematurely at 35 weeks, and doctors didn't expect him to survive. Shortly after birth, he developed an infection and spent 10 days in the NICU. As he grew, it became clear that he wasn't developing as expected. Alester wasn't speaking and eventually regressed to moving on his knees.​ He now wears braces on his legs and has undergone numerous MRIs of his brain and spine, as well as EEGs to monitor seizures. In July, Alester received a diagnosis — DLL1, a rare neurological disorder with only 17 known cases worldwide. The oldest known individual with DLL1 is 18 years old, leaving Alester's future uncertain, as doctors are unsure if he will ever walk or talk.​